Join the patient network
If you or someone in your family has SPG76, join the network to stay informed and to hear when there is a way to take part in research.
Get Involved
Help Move This Forward
There are several ways to support SPG76 research — whether you are a patient or family member, a researcher or doctor, or someone who wants to help.
Our Mission
Patient-led. Research-focused.
The SPG76 Research Foundation is a patient-led 501(c)(3) public charity dedicated to funding preclinical and translational research aimed at developing the first disease-modifying treatment for SPG76.
We don't conduct research. We fund it — directing resources to academic institutions and investigators working to understand and treat this disease. Every dollar raised supports scientific work at established research programs.
Share
Many people with SPG76 don't yet know this foundation exists. If you know someone with SPG76, or a family touched by hereditary spastic paraplegia, sharing this website helps them find the research and each other.
Collaborate
If you are a researcher, clinician, or institution interested in SPG76 or related hereditary spastic paraplegias — we'd like to hear from you. We are actively building collaborations across multiple academic centers and welcome new scientific partnerships.
Donate
All funds raised support research at academic institutions, as directed by the foundation's Board of Directors. To make a donation, contact us and we will tell you how.
Or email contact@spg76research.org.
SPG76 Research Foundation, NFP is a tax-exempt public charity under Section 501(c)(3) of the Internal Revenue Code (EIN 42-4119137). Contributions are tax-deductible to the extent allowed by law.