Dr. Ziv Gan-Or
The Neuro (Montreal Neurological Institute-Hospital), McGill University · Montreal, Canada
Leads the international effort to build a natural history of SPG76.
Research
Researchers We Collaborate With
Researchers in the United States, Canada and Brazil are working on SPG76. The foundation connects them with each other and with the people affected.
How we work with researchers
The SPG76 Research Foundation collaborates with the researchers below — sharing information, connecting them with each other and with people affected by SPG76, and working together on research grant applications, including joint applications and letters of support.
Disclaimer: Each researcher is independent. They are not employees, officers or directors of the foundation, and they do not speak for it. Their research is their own and is carried out at their own institutions, which are independent of the foundation. Being listed here does not mean that they or their institutions endorse the foundation. Each researcher has approved what is written about them.
Dr. Michel Baudry
Western University of Health Sciences · Pomona, California, USA
Studies calpains, the enzyme family affected in SPG76, and is working to test a calpain-2–targeted approach in the SPG76 mouse model.
Also Working on SPG76
Gene therapy research in Brazil
A research network in Brazil is developing a gene-replacement approach for SPG76, working with patients' cells and the SPG76 mouse model. The same network runs a national study that follows people with hereditary spastic paraplegia over time, maps how the conditions progress, looks for markers in blood, imaging and digital measurements, tests the best ways to measure change, and builds the groundwork for future clinical trials.
If you or someone in your family has SPG76, please contact the foundation rather than the researchers directly. We answer every message, keep people up to date on the research and let them know when there is a way to help. Join the patient network or email contact@spg76research.org.