Resources
Organizations and information for people affected by SPG76 and the doctors who care for them.
Clinical research
SP-CERN, a US research network for hereditary spastic paraplegia, runs its own natural history study, with research visits at its sites. To ask about it, email SP-CERN at spcern@childrens.harvard.edu — including if you live outside the US, as they work with research networks in Europe and Brazil.
Rare disease information
The rare-disease reference portal's entry for SPG76 (ORPHA:488594).
Patient organization
A US patient organization for hereditary spastic paraplegia and primary lateral sclerosis.
Rare disease advocacy
A US nonprofit for people living with rare diseases.
On this site: FAQ for families · Key scientific papers · For patients · About SPG76