October 2026
A new website: the research, the people, and what you can do today
Our new website shows who is working on SPG76 and what has happened in 2026. Researchers in the United States, Canada and Brazil are working on three paths: mapping how SPG76 progresses, protecting nerve cells, and replacing the missing gene. The site also lists the research funding applied for this year, and explains what patients, families and doctors can do today. 17 people affected by SPG76, in 10 countries, have connected with the foundation so far.